Video from the
GenoCommunity Think Tank: First National Meeting

 

Monday, September 20, 2010
8:00 a.m. – 8:00 p.m.

8:00-9:00 Registration and Breakfast
Regency Ballroom D
 
9:00-9:30 Welcome and Introductions
Regency Ballroom D

  National Community Committee
    Antonio Tovar

  Center for Public Health and Community Genomics
    Toby Citrin

  Prevention Research Center in St. Louis
    Katie Duggan

  The Genome Center at Washington University
    Elaine Mardis

  The Prevention Research Centers Program of the Centers for Disease Control and Prevention
    Sharrice White-Cooper

  Review of Agenda and Desired Outcomes
    Ella Greene-Moton, University of Michigan

  Meeting Logistical Update
    Diane Drago, Diversified Management Services
 
9:30-10:30 The Intervention Before the Intervention
Regency Ballroom D

Why are we here? (P.A.C. Isichei Model)

  Facilitator: Mrs. E. Hill De Loney, Flint Odyssey House Inc

  Panelists:
    Suzanne Cupal, Genesee County Health Department
    Kent D. Key, Flint Odyssey House Inc
    Yvonne Lewis, Faith Access to Community Economic Development
    Dana Thomas, University of Michigan

Applying the Model to Genomics (Community, Communication, Trust, Equity (CCTE))
    Don Vereen, University of Michigan School of Public Health

Discussion with Audience
 
10:30-11:00 Break
 
11:00-12:00 Panel on Community Engagement in Genomics
Regency Ballroom D

Questions:
  • Why should communities engage in genomics learning, research, practice, and policy development?
  • What are the ways in which engagement has been successfully achieved
  • Where might communities find funding to support these engagement activities and technical support on how to secure funding?

  • Facilitator: Cherilynn Shadding, The Genome Center, Washington University in St. Louis

    Lead Presenter:
      Vence Bonham, National Human Genome Research Institute

    Panelists:
      Penny Kyler, Health Resources and Services Administration
      Sylvia Rickard, Hispanic Health Care Task Force
      Heather Aiono, Genetic Science Learning Center
      Barbra Rothschild, University of North Carolina at Chapel Hill School of Medicine
      Don Vereen, University of Michigan School of Public Health

Discussion with Audience
 
12:15-1:30 Lunch
Gateway East (18th Floor)
 
1:30-2:45 Panel on Community Engagement in Genomics Research and Practice
Regency Ballroom D

Topics:
  • How to engage communities in carrying out community-based participatory research incorporating genomics with other Prevention Research Center partners
  • How to partner with local and state health departments in using genomic tools in public health practice, and how to promote the utilization of these tools by health departments
  • How to engage others in the community to join in these activities
  • Potential funding to support these activities

  • Facilitator: Katie Duggan, Prevention Research Center in St. Louis

    Lead Presenter:
      Sarah Gehlert, Washington University in St. Louis Institute for Public Health

    Panelists:
      Kristin Oehlke, Minnesota State Department of Health
      Yvonne Lewis, Faith Access to Community Economic Development
      Kimberly Kaphingst, Washington University in St. Louis
      Liliana Uribe-Bruce, Scripps Translational Science Institute, Whittier Diabetes Institute
      Heather Honoré Goltz, Houston VA HSR&D Center of Excellence

    Discussion with audience
 
2:45-3:00 Break
 
3:00-4:45 Break-out Groups by National Community Committee Region
All break-out groups will meet on the 4th floor in a Mills Studio Room.

Desired Outcomes:
  • Apply the ideas shared in today’s panel sessions to the future plans of community-based organizations and their research and practice partners.
  • Consider barriers and challenges that might limit implementation of these plans and how they might be overcome

Midwest Region (Mills Studio 3)
  Facilitators: Rosemarie Rodriguez-Hager and Gaia Remerowski

Northeast Region (Mills Studio 8)
  Facilitators: Arlene Sparks, E. Hill De Loney and Barbra Rothschild

South Region (Mills Studio 7)
  Facilitators: Antonio Tovar-Aguilar and Cherilynn Shadding

Southeast Region (Mills Studio 6)
  Facilitators: Katie Barnes and James O'Leary

Southwest Region (Mills Studio 2)
  Facilitators: Freda Motton and Heather Honore; Goltz

West Region (Mills Studio 1)
  Facilitators: Imogene Wiggs and Liliana Uribe-Bruce
 
4:45-6:00 Break – On Your Own
 
6:00-8:00 Reception: Dinner Buffet and Networking
Gateway East & Gateway Terrace (18th Floor)

NOTE: A Slide show will run continuously incorporating photos from participating community organizations, their partners and their engagement work.

 

Tuesday, September 21, 2010
8:30 a.m. - 1:15 p.m.

8:30-9:00 Breakfast
Regency Ballroom B
 
9:00-9:20 Welcome and Opening of Second Day
Regency Ballroom D

  Facilitator: Toby Citrin, University of Michigan Center for Public Health and Community Genomics

  Muin Khoury, Office of Public Health Genomics, Centers for Disease Control and Prevention

Q & A

Meeting Logistical Update
  Diane Drago, Diversified Management Services
 
9:20-10:45 Panel on Community Engagement in Policy: The Why, What, When and How
Regency Ballroom D

Topics:
  • Why it’s essential for communities to engage in policy work
  • Policy Issues Needing Community Input
  • Policy development and advocacy opportunities
  • Community-Focused Advocacy Organizations


  • Facilitator: Ella Greene-Moton, University of Michigan

    Lead Presenter:
    Vanessa Northington Gamble, The George Washington University

    Panelists:
    Phyllis Frosst, National Human Genome Research Institute
    Sharon Kardia, University of Michigan School of Public Health
    James O’Leary, Genetic Alliance, American Public Health Association Genomics Forum

    Discussion with audience
 
10:45-11:45 Final Discussion
Regency Ballroom D

Facilitated by National Community Committee

Antonio Tovar

Ella Greene Moton

Katie Barnes

Discussion of next steps to incorporate ideas emerging from this meeting into the agendas of prevention research centers and their community organization, academic and health department partners. Questions discussed might include:

  • Whether and how to form a dialogue group within the NCC to further genomic interests and activities
  • How the GenoCommunity Think Tank website might be most useful in furthering the objectives of such a group and promoting the kinds of community engagement discussed at this meeting
  • By whom and how should the group move forward to implement these suggestions after the meeting
 
11:45-12:00 Think Tank Follow-Up Form
Regency Ballroom D
 
12:00-12:15 Break
 
12:15-1:15 Served Lunch (with a to-go option available)
Gateway East (18th Floor)

Wrap-up, and Summary
Toby Citrin, University of Michigan Center for Public Health and Community Genomics

Meeting Adjournment
 
1:15-3:00 Meeting Debrief and Next Steps
Mills Studio 1
Planning Committee and NCC Leadership Only